Connect with us

Trending

Gujarat Couple Raise Rs 16 Crore For 1 Injection To Save 5-Month-Old Son

Published

on

Gujarat Couple Raise Rs 16 Crore For 1 Injection To Save 5-Month-Old Son


Gujarat Couple Raise Rs 16 Crore For 1 Injection To Save 5-Month-Old Son

The 5-month-old was suffering from spinal muscular atrophy, a rare genetic disorder (Representational)

Lunawada, Gujarat:

A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder.

The child was administered the injection at a private hospital in Mumbai on Wednesday, his father Rajdeepsinh Rathod told news agency Press Trust of India.

Spinal muscular atrophy is a genetic disorder in which a person cannot control the movement of muscles due to loss of nerve cells in the spinal cord and brain stem. This causes muscular weakness and affects breathing as well as movement of limbs.

Mr Rathod said he and his wife Jinalba managed to raise Rs 16 crore for their son Dhairyaraj’s treatment within 42 days of launching the campaign in March this year, and expressed gratitude towards donors from Gujarat and other places, including foreign countries.

While the cost of the gene therapy injection, manufactured by Swiss pharma giant Novartis, is Rs 16 crore in India, the Customs duty is about Rs 6.5 crore, which the Centre has already waived on humanitarian ground, said Mr Rathod, a native of Kanesar village near Lunawada town of Gujarat’s Mahisagar district.

He said the gene therapy injection by Novartis, considered as one of the costliest drugs in the world, is the only treatment for spinal muscular atrophy and it has to be imported after placing the order.

“The injection arrived from the US a few days back. We reached Mumbai on Tuesday and admitted our son in the hospital, where he was given the Zolgensma injection on Wednesday. It is a one-time gene therapy to treat children suffering from spinal muscular atrophy,” he said.

Mr Rathod works at a private company and lives with his wife and son in neighbouring Godhra town of Panchmahal district.

The couple learnt about their son’s health disorder a month after his birth as he could barely move his hands and legs.

“A doctor diagnosed my son with spinal muscular atrophy type-1, a rare genetic disorder which restricts muscular movements and breathing. We were warned that it could eventually prove fatal as the child grows,” Mr Rathod said.

He said the gene therapy injection by Novartis was the only hope, but its price was too high for them.

“Thus, I took the help of ImpactGuru platform for crowdfunding. We launched the campaign in March and managed to raise the money in just 42 days. The Centre also helped and waived the Customs duty of Rs 6.5 crore,” he said.

Mr Rathod is now hopeful that his son would be able to lead a healthy life.
 

(Except for the headline, this story has not been edited by NDTV staff and is published from a syndicated feed.)



Source link

Continue Reading
Advertisement
Click to comment

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Trending

Indian Premier League 2021: How Did Coronavirus Enter IPL Bio-Bubble? What Sourav Ganguly Said | Cricket News

Published

on

Indian Premier League 2021: How Did Coronavirus Enter IPL Bio-Bubble? What Sourav Ganguly Said | Cricket News





Days after the Indian Premier League (IPL) 2021 was postponed, the Board of Control for Cricket in India (BCCI) president Sourav Ganguly defended the board’s decision to stage the T20 tournament in the country amid the coronavirus pandemic. The former India captain, while explaining it is difficult to contain the virus even inside a bio-secure environment, cited the example of virus breaching Premier League bubble and affecting football players in the UK. 

Speaking about a potential breach in the bio-bubble, Ganguly, in an interview with the Indian Express, said the report received by the board suggests there was no breach. 

“I don’t think so. The report we got is that there’s no breach of the bubble. How it happened is very difficult to say. How so many people are getting (infected) in the country is also very difficult to say,” Ganguly was quoted as saying. 

Four franchises, Kolkata Knight Riders, SunRisers Hyderabad, Delhi Capitals and Chennai Super Kings, reported positive Covid cases within their camps after which the 14th edition of the IPL was postponed indefinitely. 

“Professional hands around the world can’t control it (virus penetrating the bubble). When it was happening in England (second wave of the pandemic), there were cases in the English Premier League. Manchester City, Arsenal players got infected,” Ganguly said. 

The former India skipper mentioned that due to a rigid schedule, it is difficult for the board to reschedule games easily. 

Promoted

“(Premier League) Matches got rescheduled. Because their season is six months long, they can do it. But our season is tight. Since we have to (release) players to their respective countries, rescheduling was very difficult,” Ganguly added. 

The former left-handed batsman further said that there were discussions to host the 14th edition of IPL in the UAE but since there were not many cases back then in the country, the BCCI decided to stage it in India. 

Topics mentioned in this article



Source link

Continue Reading

Trending

Over 17.15 Crore Free Covid Vaccine Doses Given To States, UTs: Centre

Published

on

Over 17.15 Crore Free Covid Vaccine Doses Given To States, UTs: Centre


Over 17.15 Crore Free Covid Vaccine Doses Given To States, UTs: Centre

Over 28 lakh vaccine doses will be received by the states, UTs in the next 3 days (Representational)

New Delhi:

More than 17.15 crore COVID-19 vaccine doses have been so far provided free of cost to states and union territories, the central government informed on Thursday.

More than 89 lakh doses are still available with the states and UTs to be administered, said the union health ministry in a statement. It also added that over 28 lakh doses, in addition, will be received by the states and UTs in the next three days.

The country had started the COVID-19 vaccination drive on January 16 with two vaccines — Covishield (Oxford-AstraZeneca’s vaccine manufactured by Serum Institute of India) and Covaxin (manufactured by Bharat Biotech Limited).

The second phase of the COVID-19 vaccination drive to inoculate people above 60 years and those over 45 with comorbidities against the coronavirus began on March 1. The third phase began on April 1 for all above 45 years of age, while people aging above 18 to 45 became eligible for inoculation in the next phase which commenced on May 1.

The country has been witnessing a massive surge in COVID-19 infections and on Wednesday registered 4,12,262 new cases and 3,980 related deaths, as per the government data.

(Except for the headline, this story has not been edited by NDTV staff and is published from a syndicated feed.)



Source link

Continue Reading

Trending

Day After Terse Note, Home Ministry Team Goes To Bengal To Probe Violence

Published

on

Day After Terse Note, Home Ministry Team Goes To Bengal To Probe Violence


Day After Terse Note, Home Ministry Team Goes To Bengal To Probe Violence

The Home Ministry had warned the Bengal government over the post-poll violence.

Highlights

  • Centre has sent a team to Bengal to assess the ground situation
  • The team will be led by an additional secretary of the Home Ministry
  • Home Ministry had warned Bengal government over the post-poll violence

New Delhi:

A day after Mamata Banerjee’s government received a terse warning in a second letter from the centre over the post-poll violence in Bengal, the Union Home Ministry has sent a four-member team to the state to assess the ground situation.

The team, led by an additional secretary of the ministry, has left for Bengal.

Seeking a detailed report on the violence, the Home Ministry had asked the Bengal government to take necessary measures to stop such incidents “without any loss of time”. The letter was sent hours after Ms Banerjee took oath as the Chief Minister for the third straight term.

Since the election verdict on Sunday, there have been clashes in parts of Bengal involving both the Trinamool Congress and the BJP. Both parties have traded blame for the violence.

In his second letter to the state government on Wednesday, Union Home Secretary Ajay Bhalla said, “I remind you that no report has been submitted despite my asking for details on post-poll violence on May 3rd. Non-compliance of this second letter would be taken seriously.”

The top Home Ministry official asked the West Bengal Chief Secretary why adequate measures to stop the violence have not been taken so far. “There are fresh reports which suggest that post-poll violence has not stopped. Immediate measures should be taken to stop violence and report regarding the same should be sent immediately,” Mr Bhalla wrote.

Moments after Ms Banerjee’s swearing-in ceremony on Wednesday, Governor Jagdeep Dhankhar too sent out a similar message on the violence.

“Our first priority is to bring an end to the senseless, horrendous post-poll violence…I have every hope that the Chief Minister on an urgent basis will take all the steps to restore the rule of law. I have every hope that the Chief Minister, my younger sister, will rise to the occasion,” Mr Dhankhar said, Mamata Banerjee by his side.

Mamata Banerjee had, moments before the Governor’s comments, said her first priority would be to tackle the Covid crisis and she would start off with a meeting with her top officers.

Next on her agenda, she said, was to handle the law and order situation. She has accused the BJP of stirring violence and communal tension after losing the election. On the other hand, the BJP’s top leaders allege that Trinamool Congress workers have murdered its members and set their homes on fire.



Source link

Continue Reading

Trending